So I had never heard of Neuroblastoma until a little over a month ago when I was sent an invite to the group "Praying for Layla Grace" and now I am hearing about it everywhere. I was reading someone's blog and someone mentioned that "Penny" had just been diagnosed with Neuroblastoma so I followed the link just to read about it. This little girl isn't even a year old. This isn't fair. I am absolutely done with this disease. I want to do whatever I can to help fight this!! I don't know whether to be angry or sad. I don't know how Shanna or Carina is handling this. This is so unfair...I have a hard time reading about this and I have tears running down my face as I do so how are they living this nightmare?! Please everyone donate what you can whether it be money or just taking the time out to read about little Penny and little Layla Grace and spreading the word. I don't want to hear of anymore children having to go through this torment...they are just babies and they deserve to be running around without a care in the world. They shouldn't have to be poked and prodded nor should they have to be scared.
"Stay strong, stay organized, stay focused. She is scared and me being scared and crying will only make her more scared so, I have to be strong. It is what it is and we have to learn how to deal with it and move forward. It seems silly to say but Aaron and I go in opposing waves. When he is upset and in the “why” frame of mind, I am strong and focused. When he is strong and focused, I’m a mess. It helps most of the time but there are times when we both breakdown. Needless to say Penelope is a trooper. It breaks my heart to see her in pain and many times I just get up in her crib and snuggle with her. I want so badly just to hold her in my arms while she sleeps without the cords and the pain. I want to see her walking and talking. I want her to smile and dance with Elmo and get giddy and tickled when she gives him kisses and hugs. I want to have her Sesame Street 1st birthday party at the park like we planned." Penelope's mom...Carina